Make-A-Wish sends family to Disney World - KRTV News in Great Falls, Montana

Make-A-Wish sends family to Disney World

Posted: Feb 10, 2018 5:44 PM Updated:

The Make-A-Wish Foundation threw Issac Fulkerson a party on Saturday at his school before he and his family leave for Disney World.

Issac was born with Duchenne muscular dystrophy, a rare disorder that causes his muscles to continuously weaken without repairing. Eventually, Issac will be in a wheelchair.

Each day is a battle but you would never know that by looking at the seven-year-old.

“Issac is a positive go-getter, he’s a leader as people here will tell you," Patrick Fulkerson, Isaac's father, said. "He’s always moving forward, he’s always positive in anything he does."

His mother, Larissa, said everyone has been outstanding so far.

“We don’t know a lot of people, moving from out of town, and so to have people show up to support Issac and us is just absolutely amazing," she said.

His principal John Conen agreed stating that Issac is an example to the other students.

“Great Falls is an unbelievable place," Conen said. "We have people that step up and lean in and help out. Issac is a fantastic student. He is a student actually that his peers look up to. ”

Although the carefree child is carrying a huge weight, it doesn’t stop him from living his version of a normal life.

“It’s hard to gauge how he’s doing on a daily basis because all he’s known in life is pain," Patrick said. "He doesn’t know when to tell you he’s in pain because he just thinks it's normal."

His parents said he doesn’t know the extent of his rare disorder but he knows he’s different than other children his age.

“He doesn’t know the gravity of his situation, all he knows is normal life. It’s life that he’s always known. It’s a struggle on a daily basis to know that there’s nothing you can do but watch your child decay away because that’s what muscle dystrophy is," Patrick said. 

But for now, they’re enjoying every second they get with their youngest son who is living life to the fullest.

For more information about the Make-A-Wish Foundation or to donate, click here.

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